My turn, I guess ..

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Hi Folks, 

I originally opened an account on these forums when I was supporting my late wife, Maureen, with her Ovarian Cancer. Maureen was diagnosed April 2009 and survived to April 2015. A truly wonderful woman who faced her illness with such grace and humour. I only hope to be half as strong as she was. I've met others and tried new relationships, but for various reasons, it's just not worked out. So I am a widow living alone. 

I have/had Throat Cancer. HPV variant that initially presented as a swollen lymph node in the right-hand side of my neck. That was in February 23. Fast forward to today (July 23) and in that time I've had MRI, CT, PET and then referred to UH Cardiff for TORS to remove the tumour and, at the same time, regular surgery to remove the affected lymph node. I'm just over three weeks post-op and seem to be recovering well. Reasonably fit and active pre-op seems to have been a benefit, but I've just turned 50 tho, so I'm no spring chicken either. 

Had my three-week post-op meeting a few days ago, and have now been referred to oncology for further treatment. I'm told that both Chemo and Radio are required and that I will need to go to my local hospital every day for six weeks to receive the radiotherapy, with some chemo in weeks one and four. The thing is I still feel wiped out from the surgery, and the shoulder is starting to really wear on me both physically and emotionally. Simply being upright and walking a couple of miles causes so much discomfort in the shoulder. The throat is 95% back to normal ... but I don't think that will last once the chemo and radio start.

Very Anxious, alone and hoping to hear from others who have gone through the same/similar

  • Hi  

    It somehow seems wrong to welcome you back to the online community, but I'm glad that you found it a supportive place when your wife was dealing with cancer.

    As you'll no doubt remember, the online community is divided up into different support groups so I'm going to recommend that you join the head and neck cancer groupwhich is a great place to ask questions, share experiences and get support from others who have been treated for this type of cancer.

    To join just click on the link I've created and then join and start a new post in the same way as you did here. You can also join in with existing conversations by clicking on 'reply'.

    x

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  • Hi  

      has pointed you in the right direction and I see you’ve joined the head and neck cancer group. That’s where I help out. I am four years plus out of treatment for throat cancer and living very well. Put your post there and you’ll get lots of replies. 
    We are a friendly bunch and we all support each other through what is a pretty gruelling but very effective treatment 

    HPV cancer is curable so hold into that. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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