My husband has recently been diagnosed with leiomyosarcoma & has been told he needs an op to remove this massive tumour
anyone else had this condition?
Hi Crissy and welcome to the Online Community but I am sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) but I do see that you have already joined and put up a post in our dedicated Soft tissue sarcomas support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
If you put Leiomyosarcoma into the search tool near the top and select "Anywhere' this will bring up all the older posts and as always you can hit reply and see if the member is still using the site.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007