All prostate cancer treatment stopped

Hi organised kaos and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

A cancer diagnosis is always a stressful time and it's natural to want to know what will happen now your husband has stopped his treatment.

As the online community is divided up into different support groups, I'm going to recommend that you join the prostate cancer group which will mean you can connect directly with others who have the same type of cancer as your husband.

To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here, and join in with existing conversations by clicking on reply. 

It would be great if you could pop something about your husband's diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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I'm in Sydney.

Are you in a major city or a large regional town?  You should have been referred to palliative care and hospice services.  Both can organise the medical, practical, and emotional support you are going to need.  Connecting with them is important even though hospice tends to get most involved at the end of life.  Spread to the bones is painful so pain management will be a priority.

The Cancer Council provides a phone support service on 13 11 20.  They also have a peer support service for patients.  They can provide a limited amount of financial assistance, too.

Hi Lolie thank you for your info. We are in metro area and are in the process of getting into the palliative system. I am going to go to the prostate cancer group to see what I can find out from other posts. As this is my first foray into any blog like this it’s all a learning curve for me. So much we have been told in the last 14 years looks good on paper but the real world has been rather different so will try getting info from the “horses mouth “ so to speak. I will also put info on my profile all the treatments (and they are many) my husband has had. Again thank you for your help. OKaos