Hi, I was diagnosed during Covid and had a torrid time. I’ve been through chemo ( bowel cancer) and thinking I was free, was told within six months it was now stage 4. Hairy times. I’m on immunotherapy now and it suits me fine. But getting nervous, because it’s nearly two years, and I hear they withdraw at two. I’m sure I’m not alone. Hope not
Hi Quilter and welcome to the Online Community but I am sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend consider joining and posting in our Bowel (colon and rectum) cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To join a group click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can put up your own post and introduce yourself to the group by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
