Hi all you brave lovelies!
Firstly, apologies for the essay!
So, very long story short - ish...
I have had stomach, bowl and lady bits issue for YEARS. It’s always been put down to suspected IBS or my lumber herniated disk problem, which I had surgery for nearly a year ago but unfortunately was unsuccessful. I have undergone previous scans in the past - a bowl enema, and a laparoscopy a few years ago. All ok. After coming off the pill around 5 years or so, I’ve never had a proper bleed. Like I just don’t have periods - ever. Although weirdly I do feel like I ovulate. Get the tail tail symptoms every 24 days or so. Egg white discharge, pain in my right side (always the right), wished I had a bloke, because, well, oh my god do I want to get my ‘grove’ on if you get me! - but still no bleed. I got signed off gyane after my laparoscopy came back clear. They did mention menopause but hormone tests have been normal. I am always in pain on my right side, it’s the norm now and over the years I have gotten used to it. Still apparently down to my back issues. Because each month has gotten worse and pretty unbearable, my physiotherapist told me to make an appointment with my GP. She booked me in for a pelvic scan and some bloods. Cool. But just over a week ago I had UTI symptoms. Urgent urination, slow flo of urine, painful bladder etc. But it didn’t really burn or hurt when peeing. Took in a sample to the doctors - all clear. Really odd. I’ve had so many UTI’s in the past I just thought I’d have antibiotics as usual. The doctor fast tracked my scan, and within half an hour the hospital called for an appointment on the Friday. It was Wednesday late afternoon. All a bit unnecessary I thought. Funnily enough I had my smear booked the Friday morning. Talk about a full MOT haha! So had my smear and scan still thinking someone else probably deserves it more than me. A doctor called only 2 hours after getting home saying what they had found. So my womb is apparently erratic - whatever that means. And is a lot thicker than it should be, so I am referring you to gyane and you will see them within 2 weeks. Wow I thought. That’s quick. Then got on good old google didn’t I. Why do we do this! So yeah I’m on the 2week suspected cancer referral. Shit. I did speak to a lovely lady from the hospital who did confirm this, and reassured me ‘suspected’. Still doesn’t make you any less scared. I have just received my smear results which are clear of HPV. Does this mean I’m all good? Or is that not connected to the womb area. I am so confused. I have only just found out my sister has breast cancer. Literally the same week as my scans. It’s devastating. If someone could shed some light on this, or make me less confused I would so appreciate it!
I have my hospital appointment on the 26th which I’m not even sure what that’s for :-|
Hi Donna88 and welcome to the Online Community but I am sorry to hear about the challenges you are dealing with.
Navigating a medical journey can be such a stressful and challenging time but getting support from others who have dealt with the ‘exact same' can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) and I do see that you have already joined our Womb (uterus) cancer support group. This is a safe place to talk to others, to ask questions and get support.
If you want to connect in with the group click on the “Bold Link” I have created above then once the group page opens you can put up your own post and introduce yourself to the group by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provide cancer information, practical information, emotional support or just a listening ear.
Do get back to me if you need further help navigating the community.
