myelodysplastic syndrome in dec 2022'.newbiejames

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diagnosed with myelodysplastic syndrome dec 2022,treatment azacitidine injections ,had some blood transfusions but none for 10wks counts staying up.

any hints travel insurance

newbie

james

  • Hi James  and welcome to the Online Community but I am sorry to hear about your diagnoses.

    Navigating the cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend consider joining and posting in our supportive MDS/MPN/ET/PV/myelofibrosis (MF) support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. I also have a rare blood cancer so I will keep an eye open for you in the group.

    To join a group click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    You can put up your own post and introduce yourself to the group by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.

    It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    As for Travel Insurance having a blood cancer diagnosis may mean getting affordable Travel Insurance could be a challenge and at times the price could be higher than the cost of the holiday.

    Do have a look through the 'recommended travel insurancethread and this New Thread in our Travel insurance group as it's where the majority of recommendations from other forum members are. You can also look through all the individual members posts in the group as well.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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