Hi all, I've just joined up so I thought I best post a message here first.
My lovely wife is going through a tricky patch at the moment and we're currently in the position of waiting on CT results.
Flu like symptoms started began around march this year - a cough, very tired and she struggled to breath. She recently started working for the NHS so we put it down to her catching various bugs from the wards.
3rd of may I had to take her to a&e as she more of less collapsed after a shift on her ward. She couldn't get up a flight of stairs. They listened to her heart, checked her bloods and sent us on our way saying she was anaemic but the rest checked out fine. No infection was identified. The next day we visited the GP who prescribed iron tablets and pain killers.
Shortly after this incident she started having pain in all her joints, unable to walk upstairs. Back to the GP who eventually prescribed codeine, did further blood tests (lupus and RA I think).
They initially put the cough down to remnants of the flu but 1 June the GP referred her on for an x-ray of her lungs and a spittoon (not sure if thats right name). He did say he wasn't expecting anything to come back.
Whilst on holiday we received a call from the GPS receptionist to say she did have an infection which was called haemophilia influenza? We managed to get hold of antibiotics in Spain and this was a bit of a relief as we thought that would sort everything out. The following day the GP rang again and said the x-ray had come back and had showed very large lymph nodes and I think he said nodules on the image. I can't remember if he said very suspect but it wasn't something we were really prepared for.
Annurgent CT scan was made and she attended this yesterday (the day after we arrived home).
So here we are, as many of you will know - full of anxiety and worry not knowing what is going on. My wife has been complaining of chest pain and stabbing pains in her lymph nodes. We're hoping it's just a nasty infection but have to be realistic.
It is a struggle to hold composure for her as I do tear up when I stop. My wife is only 31 and we have 2 children under 7.
Ayway, writing this has helped me somewhat already but I just don't know how long we will have to wait now. I know they have Dr striking at the moment so I'd imagine it may take longer.
Thanks for reading
Hello Mnts3
I am sorry to read about your wife being unwell and having to have all these tests. I can understand how worrying it is and how the waiting to find out what is causing her symptoms is. Naturally you are concerned as you are parents to young children.
I hope that she does not have to wait too long for the results of the CT scan that was done yesterday. Hopefully it will give a clearer picture.
I know what you mean by writing down your worries helps in some way- I felt the same during my cancer treatments.
Please let us know how you both get on and we are here if you need any support. You just need to ask.
If you feel chatting to someone would help then may I suggest giving the Support Line a call. They are lovely on there.
Jane
Hi Mntsc3 I am Mike and I help out around our Lymphoma groups. I just noticed your post so If it is a type of Lymphoma your wife has we have a number of groups available for you and your wife to get support.
There are over 60 types and sub-types of Lymphoma so we can’t have a group for every type but these are our main Lymphoma groups below.
General Non Hodgkin's Lymphoma
These are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low Grade Non Hodgkin’s Lymphoma eventually reaching Stage 4a in late 2013 so I do appreciate the challenges of the journey rather well but I will say that my last treatment was back in 2015 and I turns 67 last Nov and am living a great life.
