Good afternoon,
I am looking for advice about this particular drug and your experiences of it. For anyone who is on it, please advice if the side effects are manageable? How you are coping with taking it? Thank you so much <3
Hi Jagoda and welcome to the Online Community but I am sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) but I do see that you have already joined and put up your question in our Ovarian cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
You can also do a site search using the search tool near the top, put in Okaparib or Lymparza into the tool then select ‘anywhere’ and thus will bring up all the conversations
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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