Cancer unknown source of primary-loosing all hope

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Hello,

I am currently writing this post for my lifelong friend Danielle (28). On March 24th She went to her local GP with server stomach pain and non stop coughing, at first they tried to turn her away saying it was acid. Danielle knew her body wasn't right and pushed for blood work. The results came back with high levels of calcium and her doctor sent her to the hospital immediately.  Upon arrival at the hospital Danielle had several scans and was then admitted for an overnight stay. 

The next day her whole life was turned upside down, while sitting alone waiting for a friend to arrive the doctors informed her she had cancer in her lungs, liver, head and underarm. They were unsure of the primary source but would conduct biopsy’s to help narrow it down. So far we have had a liver biopsy and underarm biopsy, both being secondary. 

Yesterday June 9th Danielle was informed by her doctor that they do not know where the primary source is and they are unable to accommodate further urgent testing to find it. They are at a standstill. 

I am writing this because we are loosing hope, we are getting no answers or support from the hospital. If anyone has been through something similar or can help offer some advice/ guidance on how to get further testing, it would be greatly appreciated. 

Danielle is a 28 year old woman, who has been the caretaker of her 3 younger siblings since her mum passed away in 2014. Danielle doesn’t have the family support that a lot of people do, she is navigating this alone and while caring for her siblings.

If anyone can offer any sort of help/advice for navigating this (anything at all!!) please reach out Two hearts

sending love to all who have been affected by cancer Two hearts

  • Hi Lolabean and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read that your friend has recently been diagnosed with cancer where tests have been unable to confirm where the primary is and I know what a challenging time this will be for you.

    As the online community is divided up into different support groups, I'm going to recommend that you join the unknown primary cancer group, which is a great place to ask questions, share experiences and get support from others who have this diagnosis, and also the family and friends group, which is a safe and supportive place to discuss your worries and emotions with others who have a loved one living with cancer.

    To join either or both of these groups, just click on the links I've provided which will take you directly to the group. You can then join and start a new post in the same way as you did here and join in with exiting conversations by clicking on 'reply.

    It would be great if you could pop something about your friend's diagnosis into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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