My husband 77yrs old was at the end of January 2023 diagnosed with lung cancer met brain and in the adrenial gland.

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He has had 3 cycles of pallative chemo and each time he goes off his legs and his taste and need for food sees to have gone.  he is down to taking 1mg steriods for the brain swelling don't know if that's to low.  He's trying really hard to do little things but has no strength at all suffering real fatigue.  He is having a CT scan and MRI this week and we see the oncologist on June 14th for the results and i am dreading it (and June 14th is also my 80th birthday!!)  I am finding it very hard to watch my wonderful husband of many years getting thinner and thinner each day and looking so ill.  How do you all cope with this awful decease.

  • Hi  and welcome to the Online Community but so sorry to hear about your husbands diagnosis. 

    A cancer diagnosis like this in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help a lot.

    The Community is actually divided into Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting family and friends you may benefit from joining and posting in our Carers only and Supporting someone with incurable cancer support groups where you will connect with others navigating the exact same support challenges.

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    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hi Tues

    Chemotherapy really alters your sense of taste.  For a lot of people everything tastes metallic for a week afterwards and then like cardboard for another week, only starting to taste palatable just before you're due for chemo again.  Temperature and texture can also make foods seem inedible.  Strong flavours often help.  I used to take my steroids with chocolate mud cake because steroid are terribly bitter.

    Fatigue is normal.  Exercise helps, even if it's just walking laps of your hallway (I had chemo during covid lockdowns so this is how I got exercise).

    Talk to the team about managing side effects.  There are plenty of ways to boost calories without increasing the amount of food your husband eats.  Mouth care is important as we're prone to developing mucositis when we're having chemo and that makes eating extremely painful.

    Let us know when you have the imaging results and we can suggest other things based on those.