Looking for some hope as I'm in a very dark place. Little about me, diagnosed in 2020 with ER positive , her 2 negative breast cancer. I had clear lymph nodes, clear margins before starting chemo, thought I had come out the other side. Ever since chemo finished had lower back pain which I kept reporting, when eventually was given a bone scan which was clear. Fast forward to now, I had a recent MRI due to my left leg going numb when sitting for a period of time, I Was expecting to be told i had a pinched nerve, I was advised they had picked up an abnormailty on my spine and hip, which has now been confirmed as secondaries. I cannot believe it or accept it, I have have felt fine, I was in a good place and now I feel as though my world has come crashing down. I can't eat, sleep, I spend most my days googling trying to find success stories of people who are still living years later. I'm still clinging to the hope its wrong(wishful I know) but they can't biopsy due to the location, my organs are clear and bloods are fine. But have to have a further bone scan next week( praying it not found anywhere else). I am 41 and have 2 children my son who has just turned 18 and a daughter turning 8. I have to be around to see them grow up and at least see my daughter through school. I have reached out to a lovely lady on here-Mary who has been living with secondaries for over 10 years which gives me hope, just hoping to hear more people who are living well with this diagnosis. Thanks all, Vicki xx
Hi Vicster2011 and welcome to the Online Community but I am sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend consider joining and posting in our supportive Breast, secondary cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To join a group click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can put up your own post and introduce yourself to the group by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community ((hugs))
Hi Gail Adria navigating the journey can be challenging. I do see that you have already joined our supportive Breast cancer support group. This is a safe place to talk with people who have walk the same journey, a safe place to get support.
Hi Gail, thanks for taking the time to message! Have to say it's fab that you have such a positive attitude, it definitely helps. I have to say from when I posted this message I feel in a much bette
place, more positive and not consuming my every thought. About to start cycle 3 and hoping to have a scan soon to be told I'm NED would be nice wouldn't it? MY back and hip pain has completely gone so fingers crossed its doing the job. When's your daughters wedding? X
