Hello,
New kid on the block. I have been diagnosed with Grade 4 glioblastoma. I had surgery on the 2nd of May and have had a pretty good recovery so far, keeping my step count up and swimming in the sea. Due to start radio chemo on the 19th of June.
It's been quite an "interesting" for better word ride. Struggle with intermitent feelings of rage and anger. Since calming diwn diwn a bit my sleep has very slightly improved.
Too much information? I don't really know how to do this.
Thank you all Xx
Hi Scooby38 and welcome to the Online Community but I am sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend consider joining and posting in our supportive Glioblastoma multiforme support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To join a group click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can put up your own post and introduce yourself to the group by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
