Hello. My partner was diagnosed with NH HG T CELL three weeks ago and yesterday the oncologist confirmed it to be Angioimmunoblastic TCell type.
After reading so much info it seems to be a rare one. If we weren't absolutely devastated and terrified before, we most definitely are now.
His CHOP treatment starts next week.
I'm hoping to get some positive stories and feedback from anyone who has been on the journey with this particular type.
Many thanks in advance for any tips, strategies, anecdotes, or info. Love and hugs to all on this life changing journey x
Hi Lor 2023 and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your partners Lymphoma diagnosis.
I am Mike and I help out around our Lymphoma groups.
I was diagnosed way back in 1999 at 43 with another very rare, incurable but treatable type of Low Grade T-Cell Non Hodgkin’s Lymphoma eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ may be different I do appreciate the challenges of this journey rather well.
I see that you have already joined our T-cell lymphomas support group. Could I suggest you copy and paste your post into this group as this is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To go to the group first click on the “Bold Link” I have created above then once the group page opens you can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
I will keep an eye open for you but if you are not sure what type you have pleased do get back to me on this post and I will help you out further.
