I have just joined , not really sure what to say. I have NLPHL, just feel a little alone that’s all really.
Hi Wiggins and welcome to the community but sorry to see you joining us.
When you say you have NLPHL are you referring to Nodular Lymphocyte-Predominant Hodgkin Lymphoma? if so you may want to join and put up a post in our dedicated Hodgkin's Lymphoma Support Group.
This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To join a group first click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
I will keep an eye open for you in the group as I help out around our various Lymphoma groups as I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low Grade NHL eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ may be different I do appreciate the challenges of this journey rather well.
