NH Lymphoma

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Hello

I have None Hodgkins Lymphoma and i would love to chat with someone who also has this. 

Please

Thank you

  • What stage and type T cell or B cell

  • Hi  and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your Lymphoma diagnosis.

    I am Mike and I help out around our Lymphoma groups. I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low Grade NHL eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ may be different I do appreciate the challenges of this journey rather well.

    There are over 60 types and subtypes of Lymphoma so we can’t have a group for every type but these are our main Lymphoma groups below.

    General Non Hodgkin's Lymphoma

    Follicular Lymphoma

    Diffuse Large B-Cell Lymphoma

    Mantel Cell Lymphoma

    T-cell lymphomas

    CLL, SLL, HCL

    These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To join a group first click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.

    I will keep an eye open for you but if you are not sure what type you have pleased do get back to me on this post and I will help you out further.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thankyou

    I have follicular lymphoma, i have had 4 lots of chemo and i find out next week if in remission. 

    It has changed my life completly. 

    Regards

  • Thanks for this.

    Do put up a post and introduce yourself to the Follicular Lymphoma group as there are a good numbers of group members as FL is the most common type of Low-grade non-Hodgkin lymphoma.

    Yes a cancer journey like this can indeed change various aspects of life but unlike many lifelong chronic health conditions there are many treatment options if and when required.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge