15 months ago my wife was diagnosed with a tumour on a kidney. I say on as it's not in the organ but on the skin so to speak. We have been told as it's so rare there is no treatment. As all can attest I'm sure this blew the family. Initially it all seemed same old, she started chemo but had a bad reaction her mouth filled with ulcers and she couldn't eat. It was decided to stop as well there ain't a cure. Last Nov/December her complexion grew ever more yellow as did eyes her bloods showed huge liver problems and she was placed on palliative by gp. We attended an appointment with her consultant waiting to be told days/weeks left. But the absolutely amazing consultant had looked at scan and seen the cancer had grown but not in the liver. It had strangled the drain from the liver, also strangled her duodenum. She contacted other professionals and instead of days left we were told no guarantees but should be doable with stents. 3 days later her urine started to clear and colour return. Now her energy levels are almost flat but still here and eating tho it's a very restricted diet. Well now it's a waiting game.
Hi Nigelrl and welcome to the Online Community but so sorry to hear about your wife's diagnosis and her ongoing journey.
A cancer diagnosis like this in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help a lot.
The Community is actually divided into Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting family and friends you may benefit from joining our Carers only support group where you will connect with others navigating the exact same support challenges.
To join a group first click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help.
Hi Goofy and a warm welcome to you.
So sorry to see that you are on the cancer rollercoaster, from my long experience talking with others who are dealing with the ‘exact same' cancer type can help a lot so can I recommend consider joining our supportive Lung Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
