Hi
I was diagnosed four years ago. Went to Basingstoke for op in July 2019. First yearly scan in 2020 confirmed I had not been cured but was 'living with cancer'. I have been having yearly scans and it appears that 'it' has attached itself to my spleen.
I still find it really hard to come to terms with the diagnosis as I didn't even know I was ill! I think I am still in denial and find the yearly scans absolutely terrifying. I try to remain positive every day and look (and mostly feel) ok but know that I have not been cured.
Any tips on remaining positive would be greatly appreciated. That feeling of vulnerability never leaves me and despite my fantastic family support - 2 children and 4 fabulous grandchildren I sometimes feel so lonely.
Hello Trimpley,
Welcome to the Online Community. I am sorry to see that you were diagnosed 4 years ago with PMP and that you are now living with cancer. I can understand how it must be hard to come to terms with the diagnosis when you didn't even know you were ill. I can understand your anxiety about your yearly scans. I have 3 monthly check ups at the moment and although I know I need to have them they are a source of a lot of worry. I also get that although you have family support that you sometimes feel alone.
I will pop some links here that may help if you want to have a look.....
This is some info about PMP but if you scroll to the bottom it also shows other ways that you can get in touch with MacMillan for support.
Pseudomyxoma peritonei (PMP) | Macmillan Cancer Support
The online community is divided into forums and while it is absolutely fine to post here we do have this group that may be worth looking into.
Living with incurable cancer forum - patients only - Macmillan Online Community
Hope that this helps a bit. If there is anything else that would help please ask
Jane
Thanks
I think I've been unlucky in as much as each year I've waited a long time for results. The last two years, I've waited approximately 3 months for my yearly scans results which is really distressing. We'll see how I get on this year.
Thanks for your help 
