Hi all
I’m new to the group and have joined in the hope that other people can share some similar stories of what we as a family are going through at the moment
3 weeks ago my mum was admitted to hospital with suspected gallstones or pneumonia, after numerous tests she was told she possibly had liver cancer, they took a biopsy of the liver and after a 2 week agonising wait it was in fact confirmed that she had CUP, the drs explained that it was incurable but there may be possible treatment she can have and that it seemed to be an aggressive form of cancer
since my mums diagnosis she has been in and out of hospital with high calcium levels, the high calcium Is causing confusion and exhaustion to the point of slipping in and out of sleep during conversation, she is under the care of the palliative team, she is awaiting a meeting with oncology to discuss future treatment but they won’t have the meeting until she is at her best, i fear that the more they prolong the meeting the longer we have to wait for treatment and the more the cancer has chance to progress
Hi ShellyW and welcome to the Online Community but so sorry to hear about your mum’s diagnosis.
A cancer diagnosis like this in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' support challenges can help a lot.
The Community is actually divided into Support Groups (Discussion Rooms) and when it comes to the practical and emotional challenges of supporting family and friends you may benefit from joining our Carers only and Supporting someone with incurable cancer support groups where you will connect with others navigating the exact same support challenges.
To join a group first click on the “Bold Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help.
