Hi everyone, my name is John, I joined the group when I first got diagnosed with a tumor in my nasal cavity wich had eaten patr of the bone away after a pet scan I got told it was a t3 tumour wich had spread to my lymph nodes both sided in my neck the news was devastating to hear and even harder for my wife and my children to hear, after 7 weeks of intense radiation every day and chemo once a week I was left with side effects like most people in the community are, I finished treatments November last year and I had a 2nd pet scan at the end of February this year and I am pleased to say for now I have the all clear and we are praying it stays that way.
I find it difficult discussing personal issues and just don't talk about things like a lot of men I guess, I find it hard to open up but I feel now is the time to talk about it hence this rather long post, they say the side effects take time to go away if they do, I have been left with very little saliva if any most days and a very sensitive tongue wich I'm told may be permanent so I have to have a bottle of water each time I eat to help me eat, it has also given me tinnitus and thr radiotherapy has damaged one of the bones in my inner ear so hearing on one side is almost none existent, and I am still getting very tired if I do anything physical so I guess iv got to put up with the side effects unless they improve with time (I hope they do)
Is anyone here had the side effect the same as mine?? Do they improve at all or is that it and iv got to live with it.
I would like to wish everyone in the community all the best and hope you get good results like I was lucky to get and I do hope your side effects are not too unbearable. Thank you for reading my pos and sorry it dragged on a bit 
Hi John and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
That's great to read that you've recently been given the all clear from a tumour in your nasal cavity. Understandably though, it has left you with all sorts of feelings and emotions.
As the community is divided up into different support groups, I'm going to recommend that you join the head and neck cancer group which will mean that you connect directly with others who have had the same type of cancer as you.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here, and join in with existing conversations by clicking on reply.
It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
