Acoustic Neuroma

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Hi everyone 

I was diagnosed with an acoustic neuroma about a year ago.

over the past couple of months I now suffer bad tinnitus, I feel sick and dizzy which are symptoms but anyone have any information that may help me with my symptoms & does this get even worse & how to live with it 

  • Hi  and welcome to the Online Community but I am sorry to hear about the problems you are having.

    Navigating the journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' problems can help a lot.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend consider joining our supportive Low-grade brain tumours support group. This is a safe place to talk to others with a similar diagnosis, to ask questions and get support.

    To join a group first click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.

    Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00email or live webchat where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.

    Do get back to me if you need further help.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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