Hello, I hope someone can help me or give the benefit of your advice, My Wife sadly passed away on 20th November last year. She had been diagnosed with Stage 4 Metastatic Secondary Breast Cancer in 2015 which had spread to both kidneys and her right lung. Progression had been gradual but slow so it was a real shock that she suffered a rapid decline in health which led to her death. We actually had a scheduled appointment with her Oncologist on 4th November to discuss further treatment options. Her Oncologist had proposed the use of Palpociclib in conjunction with Fulverstrant but his IFR application for the Palpo had been refused on the grounds of previous "exposure" to Everolimus. Has anyone else had a similar experience ? For the benefit of those who follow I am seeking to challenge what I see as a cruel and illogical decision making process. Many Thanks.
Hi Fortune8 and welcome to the Online Community but so sorry to hear about your wife.
A cancer journey like this in the family can be such a challenging and stressful time but getting support can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you consider joining our supportive Breast, secondary cancer support group. This is a safe place to talk to others who may have a similar treatment experience, to ask questions and get support from patients and family members who have navigated the same journey.
To join a group first click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.
Do get back to me if you need further help.
