I just wanted to say hello to you all and share my journey so far:
I had a prostatectomy back in July 22, which seemed uneventful. However, my blood test after 2 months showed a small, but significant, PSA reading of 0.5. My hospital, the UCLH, asked me to have another blood test after a further month. This had now risen to 1.48. These tests clearly showed that the cancer had spread out of the prostate gland. A subsequent MRI indicated that it had gone into the left lymph node.I was then put onto hormone therapy to be followed by radiotherapy later this year if my PSA drops below 1.0.
I have now been on hormone treatment for about 3 months, and were pleased to be informed this week that a further blood test has shown that my PSA is now 0.05! An excellent result.
I'm seeing the oncologist next week to discuss things, but I wondered if anyone has been in a similar situation. Could hormone treatment be safely stopped now? Indeed, would I still need radiotherapy for such a low PSA? Just wanted people's views from their own experiences.
Thank you for reading this.
Hi Busibaz and welcome to the Online Community but I am sorry to hear about your diagnoses and ongoing journey.
The cancer rollercoaster can be such a stressful and challenging time but reaching out to the community will give you the opportunity to ask questions and getting support from others who are navigating the ‘exact’ same journey.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) and I do see you have already joined our supportive Prostate cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To join a group first click on the “Bold Link” I have created above then once the group page opens you can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
You can also scroll through other members posts and click “Reply” to get involved.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help.
