My husband was diagnosed with advanced Stage 4 adenocarcinoma of the lung last September and has been on Osimertinib. It has been a real rollercoaster of a ride, with many setbacks, the latest being both of us getting Covid. The results of his sometimes on-off treatment are mixed so far, with some small signs of improvement on scans, but he still feels dreadful and gets quite disheartened, especially with the setback from Covid and suspension of treatment yet again. His biggest struggle is food. He has coped with other side effects like mouth ulcers and fatigue. Any tips welcome!
Hi KC24 and welcome to the Online Community but so sorry to hear about your husband's diagnosis and the journey you are all on.
A cancer diagnosis like this in the family can be such a challenging and stressful time but reaching out to the community will give you the opportunity to ask questions and getting support from others who are on the ‘exact’ same journey.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you consider joining our supportive Lung Cancer support group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same journey.
When it comes to the practical and emotional challenges of supporting your husband you may also benefit from joining our Carers only support group where you will connect with others navigating the same support challenges.
To join a group first click on the “Bold Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
You can also scroll through other members posts and click “Reply” to get involved.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help.
