Hello, I’m just new to this. Todays been hard and I felt I needed somewhere to put down how I’m feeling. To give some context I look after my mum who was diagnosed with a soft tissue sarcoma a couple of years ago, to then be told she also had tumours in her lungs. Treatment has not gone very great, each thing that’s been tried has had little to no success. But there has always been a plan. And when there’s a plan you can look forward and keeping moving. But now she has reached a stage where there’s been more complications and hospital visits and the plans have stopped for now. I don’t know what’s next. And that scares me.
Mum is tired a lot now and struggles to get out and about, which as a family we find challenging because we are used to doing so much together we find it difficult to go out without her but I fear everyone’s mental health will begin to take a toll. It’s hard to know what to do for the best sometimes.
Hi Sar24 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read about your mum and I can see that this must be a very difficult time for the whole family.
As you know, the online community is divided up into different support groups and I can see that you've already joined the very supportive carers only group. When you feel ready to post there you can start a new post in the same way as you did here, and join in with existing conversations by clicking on reply.
It would be great if you could pop something about your mum's diagnosis so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
