Hello, I am new to this forum and looking for help with the above which was diagnosed 2018 when I was also diagnosed with NHL"B" Cell. Had treatment for NHL which was fine but now my Para Protein levels have risen very high + other symptoms & my Consultant has decided I should start treatment. She wishes me to have ZANUBRUTINIB which has been approved.
Does anyone else in the forum have this & receiving this treatment?
Hopefully someone can get back and tell how things are and if suffering any side effects.
Thanks Gabbie
Hi Gabbie and a warm welcome to the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.
I don’t have Waldenström’s macroglobulinaemia but I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low Grade NHL eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ is different I do appreciate the challenges of this journey rather well.
I see that you have joined our dedicated Non-Hodgkin lymphoma support group, why not click on the Bold Group Link(s) I have created above and introduce yourself to the group by putting up your own post or replying to existing posts.
Always around to help more or just to chat
Good morning Gabbie good to see you posting in the NHL group. I am doing great now although I had a bumpy journey (you can see my story through the link at the bottom)
You may also want to do a site search for the dug ZANUBRUTINIB.
If you put ZANUBRUTINIB into the search tool 
near the top, select ‘anywhere’ this will show all the older posts (just did the search and found a few posts) and as always you can hit reply and see if the member is still using the site.
