Dad has been told he has bowel and lung cancer- just don’t know what to do.

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Hello,

My elderly dad has always been very active, walking my dog (I have mobility problems), diy, gardening & running the home and looking after mum.  Dad started to feel tired in December but he’d always been affected by SAD in the winter, he was even repairing his car in December.  A routine health check revealed some concerns in a blood sample, so GP asked for more and even saw dad between Christmas and New Year.  If this GP hadn’t been on the ball we may still be thinking he was battling a winter bug.  His iron levels were/are through the floor which hasn’t helped with fatigue and appetite.  He had had a gastroscopy and colonoscopy which revealed cancer in his bowel, then following a CT scan we went to see a consultant on the 14 Feb.  The bowel cancer was confirmed by the biopsy and we were told it would have been operable but due to his current frailty it wouldn’t be done but also because the scan showed severe scaring in both lungs and multiple tumours and a question mark over a few lymph nodes.  It was agreed the next steps were an iron infusion, biopsy on a lymph node and referral to the ‘chest team’, we were told it’s not curable but it MAY be manageable.  He had an iron infusion last week and I know they take weeks to show if they’ve helped, so far he’s just the same and can hardly walk without being out of breath and he’s losing so much weight, there was hardly a picking on him to start with.  He’s from a generation & family where the man was the provider and could fix or sort anything and now he can’t stay awake to have a conversation about anything.  Mum, dad and I share a house with dad often saying he was the oldest but the fittest of the lot of us, I think that’s one reasons I’m so terrified for us all going forward and worry about his MH as he can’t be who he was and is “sorry”.  He’s used to being the one accompanying me to hospital appointments and in the click of a finger it’s flipped, he also helped me with the business I set up after losing my full time employment when my health got worse.  The lymph biopsy is on Monday and then more waiting and watching him in what feels like a spiral down.

As so many of you know we’re all now going through so many emotions in one hour never mind a day.  I’m grown and this year I’ll hit a big birthday and I feel guilty that we actually made plans to celebrate but, they’ve been cancelled now as tests and treatments come first plus, I don’t want to celebrate anyway.  Yes we fought about many things but people say that’s because we’re so alike, but my dad, the man I always compared boyfriends to and could fix anything is frightened and dying in front of me and there’s nothing I can do can stop that.  I feel like a bit of a bully as I’m trying to sort the practical stuff and I’ve been told not to let him see how utterly terrified I am, as well as support mum who’s never got involved with household bills and who started to decline when diagnosed with COPD and arthritis in both hips.  I’ve had so many times this week where I feel like I’ve been kicked in the gut and a huge wave of fear and tears have almost paralysed me.  I know this is not about me it’s about how we can make this easier for him and I will do what we need to do but whether it’s separate, linked to or because of my physical health I’ve suffered a lot with my own MH all my life.  I’ve never felt so alone and this feels one step closer to me solving that problem, these will be my last dog and cat as when I don’t have them to consider I don’t see any point after my parents are gone.

  • Hi  and welcome to the Online Community but so sorry to hear about your dad's diagnosis and the journey you are all on.

    A cancer diagnosis like this in the family can be such a challenging and stressful time but I do hope you will find the Community a safe place to get support from family members who are navigating the ‘exact’ same journey.

    The Community is actually divided into support groups (discussion rooms) and when it comes to the practical and emotional challenges of supporting family you may benefit from joining our general Carers only and Supporting someone with incurable cancer support groups where you will connect with others navigating the exact same support challenges.

    If you'd like to connect in with a group click on the Red (Bold) Group Link(s) I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."

    You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.

    Supporting someone you love on their cancer journey can be very hard so you may find it helpful to look at this information on your feelings when someone has cancer and especially this section on looking after yourselfIf you're starting to struggle then it would be a good idea to have a chat with your GP.

    The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear. 

    We also have our Ask an Expert section but do allow a few working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.

    Please do get back to me if you need further help.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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