ET

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  • Diagnosed with ET in December (JAK2 mutation ) . Still adjusting myself to accept this. Good days when feel normal and then days when just sleep most of the time . 

  • wondering if ET means I should get free lateral flow tests as husband has started sneezing 
  • Hi  and a warm welcome to the Online Community but so sorry to hear about your diagnoses.

    The blood cancer journey can be such a stressful and challenging time but you have done the right thing in reaching out to a place where you can ask questions and getting support from others who are on the ‘exact’ same cancer journey.

    The Community is actually divided into support groups (discussion rooms) so can I recommend you join and post in our supportive MDS/MPN/ET/PV/myelofibrosis (MF) support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    If you'd like to connect in with a group click on the (Bold) Group Text Link I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."

    You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.

    Check the link below about free LFTs www.gov.uk/order-coronavirus-rapid-lateral-flow-tests

    The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear.

    Do get back to me if you need further help.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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