Hello, My cancer journey started in 2018 when i came to macmillan for support due to having a cancerous ovarian cyst. After being free for many months after my operation to remove cyst and my left fallopian tube and ovary i kind of put the stress of all this behind me and continued on with life.
A routine scan in October 2021 has brought me back. This time it was stage 4 as the cancer had spread to other areas in the body. I had a total hysterectomy and they removed the new tumour as well. During this operation they failed to see or remove smaller bits of cancer that had been in other parts of of my abdomen. Apparently this was due to a outside radiographer misreading my results. Anyways to get rid of and keep things stable i had chemotherapy about 5 rounds every 3 weeks which made me lose my hair but did not decrease or get rid of anything. Only good thing was a blood clot i had dissapeared. This blood clot saved my life i think due to the infection symptoms, i had a scan in a&e which picked up the smaller bits of cancer. Fast forward chemo didnt work went on to radiotherapy. It has kept things stable. I thought things were going well. Had an amazing chilled summer with my kids.
During a routine scan in October they picked up a new lesion in my liver. On January 20th 2023 i got told i have stage 4 ovarian cancer and secondary liver cancer. It is not curable. No surgery will be done as it is highly likely the cancer has travelled through the blood stream and could be undected elsewhere. Going back to a new line of chemothery for 9 weeks, my first round was yesterday. It is just the one drug carboplatin. Unsure of how things will go.
Im trying to be positive but how can you be when u are dying and leaving three children under 10y of age without a mother? I may have a few months or a year it is unknown. I feel like im in a mental sludge trying to get my affairs in order.
My 6 year old daughter is ill with high fever today, doesnt see reason, doesnt feel comfort without me. Ive been up all night. I dont begrudge my husband as he works long hard hours and needs his rest. Hes been barely sleeping since my new diagnosis. It just brings out the stress and worry of how my husband will cope in situations like these especially when its so hard to see GP or get medical advice. A mum just experienced enough to know if a cough, cold is serious enough to ask for the doctor
So thats my cancer journey so far. Thank you for reading.
Hi BengaliMum32 and a warm welcome to the Online Community but so so sorry to hear about the journey you are on and your diagnoses.abd prognosis.
A cancer journey like this can be such a stressful and challenging time but you have done the right thing in reaching out to a place where you can ask questions and getting support from others who are on the ‘exact’ same cancer journey.
The Community is divided into support groups (discussion rooms) so can I recommend you join and post in our supportive Living with incurable cancer - incurable patients only support group. (Please join the group but this will then have to be approved by the Macmillan Community Team so will not happen immediately)
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the (Bold) Group Text Link I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.
You could copy and paste the text from this post into your new post.
The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
We also have our Telephone Buddy Service where you can be matched with someone who understands what you're going through, and they'll give you a weekly call.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.
Do get back to me if you need further help ((hugs))
