My mum has lymphoma

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  • Hi I joined the group as my mum who is 84 has been in hospital for 3 weeks with an oedema in her leg and kidney issues has had a biopsy for lymphoma. Now the medics say she may only have 2 months left. We are distraught and are bewildered about how this has not been diagnosed before as she has had a swollen leg and pain down her side for a while. I have so many questions but ultimately try his is more about what can happen next to help her. How can we get her mental health help and find out next steps? Pray 
  • Hi  and welcome to the Online Community but so sorry to hear about your mum’s diagnosis and prognosis.

    A cancer diagnosis like this in the family can be such a challenging and stressful time but I do hope you will find the Community a safe place to get support from family members who are navigating the ‘exact’ same journey.

    I was diagnosed way back in 1999 with my type of Lymphoma that is incurable but treatable. The problem with some of the 60 types and sub-types of Lymphoma is that people can be living with it for some time and it is only picked up when being screened for other health issues., 

    With her prognosis you need to connect with others navigating the same support path. The Community is actually divided into support groups (discussion rooms) so can I recommend you join and post in our general Carers only and Supporting someone with incurable cancer support groups where you will connect with others dealing with the same challenges while supporting family.

    If you'd like to connect in with a group click on the (Bold) link(s) I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."

    You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.

    The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear. 

    We also have our Ask an Expert section but do allow a few working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.

    Please do get back to me if you need further help.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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