Good Evening everyone, my name is Simon. I was told in the last few days that I have been told that I’ve got cll it’s called for short. Just wondering if any one had any information on it as it’s still early days for me and my wife. Thank you
Hi Simon simon2015 and a warm welcome to the Online Community but so sorry to hear about your diagnoses.
The cancer journey can be such a stressful and challenging time but you have done the right thing in reaching out to a place where you can ask questions and getting support from others who are on the ‘exact’ same cancer journey.
I am Mike and I help out around our blood cancer groups. The Community is actually divided into support groups (discussion rooms) so can I recommend you join and post in our supportive CLL, SLL, HCL support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the (Bold) Group Link I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear.
I will keep an eye open for you in the group.
Do get back to me if you need further help.
