Hi, I am new to the group. I have just been diagnosed with MPN and had a bone marrow biopsy three days ago to find out which type it is. I am currently only on aspirin and am just beginning to get my head around what having MPN means.
I have read several useful comments already, many thanks.
Hi MrsE and a warm welcome to the Online Community but so sorry to hear about your MPN diagnoses.
I am Mike and I help out around our various blood cancer groups.
The blood cancer journey can be such a stressful and challenging time but you have done the right thing in reaching out to a place where you can ask questions and getting support from others who are on the ‘exact’ same cancer journey.
You already see that Community is divided into support groups (discussion rooms) so for you to connect better with others in the same position can I recommend you post in our supportive MDS/MPN/ET/PV/myelofibrosis (MF) support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the (Bold) Group Link I have created above then once the group page opens you can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
I will keep an eye open for you in the group and can give you further support.
