Hi all my daughter was first diagnosed at 7 she’s now 26 and been struggling with wilms tumor for 19 years she’s now 26. She has never been cancer free. They just told us there is nothing more to be done. Last week I thought she was gonna die. I’m not ready for this. She doesn’t want a hospice but wants to be at home. I’m really struggling
Hi ameenah and welcome to the Online Community but so sorry to hear about your daughters diagnosis.
A cancer diagnosis like this in the family can be such a challenging and stressful time but I do hope you will find the Community a safe place to get support from family members who are navigating the same journey.
The Community is divided into support groups (discussion rooms) so can I recommend you join and post in our general Carers only and Supporting someone with incurable cancer support groups where you will connect with others dealing with the same challenges while supporting family.
If you'd like to connect in with a group click on the (Bold) links I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.
Please do get back to me if you need further help ((hugs))
