Diagnosed with Spindle cell Sarcoma

Hi ClaudiaL and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I'm sorry to read that you've recently been diagnosed with spindle cell sarcoma but you've joined the right community for support.

As the online community is divided up into different support groups, I'm going to suggest that you join the soft tissue sarcoma group, which is a great place to ask questions, share experiences and get support from others with this type of cancer.

To join  just click on the link I've created which will take you to the group. You can then join and start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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Thank you! That's very helpful. Do you know if there is any group dedicated to mental health? I currently having emotional support once every two weeks, but I don't feel like it it enough. 

Hi

There is a group called emotional support which you could join.

Macmillan have also teamed up with Bupa to offer up to 6 free counselling sessions for people struggling emotionally because they are living with cancer. Clicking on the link will give you more information about this.

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