Hi I'm new here was diagnosed with mouth cancer 8 months ago still on recovery very slow progress still not eating normal sleepless nights due to dry mouth
Hi Culo and a warm welcome to the Online Community but so sorry to hear about your diagnoses.
A cancer journey can be such a stressful and challenging time but you have done the right thing in reaching out to a place where you can ask questions and getting support from others who are on the ‘exact’ same cancer journey.
The Community is divided into support groups (discussion rooms) and I do see that you have already joined our supportive Head and neck cancer support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the (Bold) Group Link I have created above and once the link opens up you can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
We also have our Telephone Buddy Service where you can be matched with someone who understands what you're going through, and they'll give you a weekly call.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.
Do get back to me if you need further help.
Hi Culo
Mike has linked the Head and Neck cancer group. That's where I hide out. I'm on the cusp of 4 years clear of tongue cancer.
For the moment can I ask whether you have tried Xylimelts which are a little pastille that sticks to your gum at night slowly dissolving to keep your m mouth moist? I still use one and guess I always will. I don't need it much now but sugar free chewing gum was a godsend to get saliva flowing.
Can I ask how you aren't eating and what the problem is?
Come over to the group and say hello
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
