Hi, I have just recently been diagnosed with a NET, Neuroendocrine tumour. I didn't know I had it till I felt awful in June last year. Its all happened so quickly really, test after test with a diagnosis finally in October, it's attached to the nerve endings and blood vessels of my bowel. Hopefully there is a plan to remove it. I am grateful for the care I have had from the NHS. I'm trying to stay positive but recently have had a wobble and been really emotional. I'm trying to stay focused for my family. Love to all who are fighting this terrible disease. X
Hi Saffydon and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read that you've recently been diagnosed with a NET and I'm sure that you'll find, like most of us do, that once you have a treatment plan in place you'll begin to feel a lot more in control.
As the online community is divided up into different support groups, I'm going to suggest that you join and post in the neuroendocrine cancer group, which is a great place to ask questions, share experiences and get support.
To do this just click on the link I've created which will take you to the group. You can then join and start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your diagnosis into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
