Hi I’m new and can’t sleep!

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Hello 

I have been waiting all christmas for my diagnosis, on my tonsil, my consultant called me yesterday with my results, but I’m more confused than I was before.

He said my  chest and CT and MRI scans are are good, but the biopsies he took unfortunately look like cancer.

But he wants me in ASAP to do more biopsies under a general anaesthetic. I asked why not just take the tonsil now and get rid of it, but he said it’s better to do that after so they can get good margins.

I thought Id asked and understood everything while I was on the phone but now I am more confused than ever! 
Does anyone know what I should expect?

  • Hi Miss C Jayne

    I know someone will be along with a more robust answer but you might want to join the head and neck forum.   I'm sorry I could not be more help.

    Best wishes

    Michael 

  • Thank you, I have just done that, thanks for the advice Thumbsup

  • Hi   and a warm welcome to the Online Community but so sorry to hear about your diagnoses.

    A cancer journey is such a stressful and challenging time but you have done the right thing in reaching out to a place where you can ask questions and getting support from others who are on the ‘exact’ same cancer journey.

    The Community is divided into support groups (discussion rooms) and I see you have already joined and posted in our  supportive Head and neck cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear.

    We also have our Ask an Expert section but do allow a few working days for a reply.

    We also have our Telephone Buddy Service where you can be matched with someone who understands what you're going through, and they'll give you a weekly call.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.

    Do get back to me if you need further help.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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