Lung cancer

Hi faithful and welcome to the Online Community but so sorry to hear about your partners diagnosis.

A cancer diagnosis in the family can be such a challenging and stressful time but I do hope you will find the Community a safe place to get support and to ask your questions.

The Community is divided into support groups (discussion rooms) so can I recommend you join and post in our supportive Lung Cancer support group. This is a safe place to talk to others who may have a similar diagnosis and treatment experience, to ask questions and get support from family members who are navigating the same journey.

If you'd like to connect in with a group click on the (Bold) Group link I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."

You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.

When it comes to the practical and emotional challenges of supporting family you may also benefit from joining our general Carers only and Supporting someone with incurable cancer support groups where you will connect with others navigating the same support challenges.

The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear. 

We also have our Ask an Expert section but do allow a few working days for a reply.

Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.

Please do get back to me if you need further help.

Thankyou  x

Hi, I'm new to this group  because my mum has just been diagnosed with lung cancer.. but before she was  diagnosed she had been and still is feeling of balance, as long as she walks slowly and doesn't turn her head to quickly she can stay upright,  but she said she felt like she was toppling to one side.  and also had some bleeding  from the ear,  but they don't seem to think it's related? so I was surprised  when I seen your post.

Hi  welcome  to the group.sorry to hear about your mam we still.havnt been given answers yet they dont think its the chemo  but has been happening since November x

Hi Krafty Lady K and a warm welcome to you as well.

You may want to look through the links I have put into my reply to faithful and consider joining and posting in our various support groups as this will widen your support base as you support your mum.

Do get back to me if you need further help to navigate the community ((hugs))

Thank you x

Thanks for the welcome.  I was just looking through the posts last night when yours jumped out,  with her being the same but  no-one seems to know whats causing it.  she's  newly diagnosed,  but surgery and chemo are not an option for her, she's 76 has COPD and has prevoisly had 2 mini strokes.  fatigue and breathlessness  are part and parcel of everyday life,  but has been worse lately,  and now we know why. Its not knowing what to expect and how  will she be  with it.  xx

Sorry to hear that my partner has had 10 months of chemo  but its not working  now he feels  very tired every day he has had more falls through the night so the doctor is reducing some of his meds in case thats making him disoriented. He has had a brain scan but that was clear .I do hope you get some answers soon , the waiting is the worst  let us know how she is xx

I'm  so sorry to hear that the chemo isn't working,   i can only  imagine how worried you have been,  and also how hard it is with falls,  and not knowing why it's happening..

I suppose my biggest worry is that the radiation therapy isn't a cure and since there are no other options available to her,  what will happen after it.  she's prone to bouts of extreme fatigue where it takes her to walk ( this has been going on for a few years,  but they say it's brought on by stress )  my step dad has parkinsons  so he's not exactly able to help her.  they had to move to a wee bungalow with ramps etc and wet room for him so that was stressful enough.  but I think I just feel a bit overwhelmed and  don't know how I'm going to be able to look after her when she needs it and him..  The uncertainty  is   horrible

Yes its overwhelming i know we take one day at a time and try not to look further than that his cancer his incurable  but treatable and there is good treatments and clinical  trials plz try to stay positive we have a palliative  care nurse  who is very good there is lots of support and help out there we see a councillor through Macmillan also keep us posted xx