Hi all, I was diagnosed with lobular breast cancer in September. I had to go for mri as mammograms and scans don’t pick up this type of cancer. Mri found two other ares, then I had surgery to remove cancer then 3 weeks later more surgery to remove lymph nodes. I have an appointment on 4 January with oncology to talk about chemo and radio. My breast nurse mention the cold cap but I know it can put extra time and u can still loose hair or have bald patches! Anyone tried this. Also I don’t know what to expect from chemo will I be in bed ill?? Thanks for any advice Xxx
Hi Lobular breast Journeyand a warm welcome to the Online Community but so sorry to hear about your diagnoses.
A cancer journey is such a stressful and challenging time but you have done the right thing in reaching out to a place where you can ask questions and getting support from others who are on the ‘exact’ same cancer journey.
The Community is divided into support groups (discussion rooms) and I de see that you have already joined our supportive Breast cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the (Bold) Group Link I have created above then once the group page opens you can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
I have a totally different cancer and treatment journey and for my type of cancer cold cap is not recommended.
The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
We also have our Telephone Buddy Service where you can be matched with someone who understands what you're going through, and they'll give you a weekly call.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.
Do get back to me if you need further help.
I am doing very well thank you. I have been on my incurable blood cancer journey for coming up to 24 years next year but I am over 7 years out from my last treatment and living the dream 
