Like others, here's a group I didn't think I'd ever need to join ... at least not for a good few years.
I'm 64 and had a 5 for my PiRADs MRI scan and a Gleason of 8 (4+4). Not sure about my T score ... but I think it's probably T2 or T3 (no signs of spread outside the Prostate so far).
I'm in for a bone scan tomorrow.
Also waiting for the MDT to decide my treatment pathway. Looking like prostatectomy or radiotherapy. I'm already taking hormone suppressants.
I do have a question ... given the above two options, what would people say are the pros and cons of each?
Having had a Bladder Neck Incision several years ago it sounds like they are worried about urine leakage. Great :-S
Thanks
Hi HappyPixel and a warm welcome to the Online Community but so sorry to hear about your diagnoses.
A cancer journey is such a stressful and challenging time but you have done the right thing in reaching out to a place where you can ask questions and getting support from others who are on the ‘exact’ same cancer journey.
The Community is divided into support groups (discussion rooms) I do see the ou have joined our Prostate cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the (Bold) Group Link I have created above then once the group page opens click you can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
We also have our Telephone Buddy Service where you can be matched with someone who understands what you're going through, and they'll give you a weekly call.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.
Do get back to me if you need further help.
