Hi all I am new to the group and not sure what help I want but thought I would try and reach out here to see if it can do anything for me.
I have tried a couple of counselling sessions, antidepressants are not for me but I feel I am running out of options some days are just very very hard even though I know there are others in far worse positions I just can’t seem to get myself out of this constant down feeling which hits rock bottom regularly.
I just feel there are so many things coming at me from different directions, a new disability to adjust to, the inability to exercise when I was so active before, feeling like a bad parent as I was diagnosed when my baby was about 10 months old. The stress on my family. Having such a rare cancer means lack of knowledge and the fb group I have found has only lead me to see that it is a very high reoccurrence cancer. Sorry for the long post I will pop my bio info here just incase it helps with any direction in what to do.
Adrenal cancer, surgery to remove tumour and adrenal gland April 2022. Mitotane (tablet chemo) started May 2022 for approx 5 years. 5 weeks of radiotherapy in August.
aged 31, have a 1.5yr old child.
Surgery and treatment means I will forever be steroid dependent so daily tablets as well as chemo tablets and have to carry an emergency hydrocortisone injection as I am at risk to going into adrenal crisis which has happened twice already and put me in hospital.
Hi Gem91 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
Having a cancer diagnosis can be an extremely difficult situation to deal with and it must be doubly hard for you having such a young family as well.
As the online community is divided up into different support groups so I'm going to recommend that you join and post in the kidney cancer group, as this will give you the chance to connect with others who have adrenal cancer.
To join just click on the link I've created which will take you directly there. You can then join and start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
