I am a 54 ye old woman I had been mgus for past 5yrs with my paraprotien level going up and down then bone pain started in my legs and ribs on Tuesday this week got told my paraprotien and light chain levels thru the roof and tripled in 3 weeks consultant told me my levels but can’t remember he done a bone marrow test and bone biopsy in the afternoon as he said it really need done urgently and now waiting on mri he also talked about treatment ect and gave me oramorphine along with my meds I already take I am just scared and if it hard to talk about as my son and daughter 26 and 30 years old find it hard talking about the are good trying to help me thru day
Hi Puggsy and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It's really hard when things change and I can understand why you'd be feeling scared right now.
As the online community is divided up into different support groups so I'm going to recommend that you join and post in the myeloma group, as this will give you the chance to connect with others who have MGUS.
To join just click on the link I've created which will take you directly there. You can then join and start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
