Hi im ryan im 34 and I'm new to this group, I'm not sure if I'm in the right place but I honestly I don't know what to do.
I will give a bit of background on what is happening with me.
Around 7 years ago (2015ish) I had serious pain in centre of chest under rib bone, ended up in hospital and was told I had gallstones (1 large stone blocking my common bile duct just above pancreas (this cause acute pancreaitis) had an operation next day to remove the stone and all was fine until they removed the gallbladder. After that they booked me an appointment to have gallbladder removed.
Gallbladder was removed the following year 2016 around 8 months after the blockage.
Ever since I have had problems with toilet and stomach, stool is 80% of the time bright yellow and loose, hardly ever solid. I've visited so many Dr's over the years who keep saying I have bad gastritis that keeps flaring up because I have no gallbladder. As always they prescribe antacids.
Well these would usually work for a little and then stop, I would get horrible reflux and woke a couple of time chocking. But currently right now I'm in constant pain in my stomach, the pain radiates to my back left and right side and also bellow my stomach just above the pubic area. I have constant bloating and haven't been able to eat anything in the last 5 days. When I use the bathroom it is constant diarrhea and feels difficult to go (not sure if this is because I haven't been eating) also throwing up in the mornings due to fear i think. So beginning of October (2022) I went to the walk in centre and the Dr done the whole feel the stomach and said it was soft and that he thinks it's a bad case of Reflux and gave me omeprazole 40mg. 6 weeks on from then and the pain was just getting worse so I ended up in A&E and had blood tests done to check liver, pancreas and kidney function aswell as full blood count. They all came back normal and the Dr once again said you are having bad reflux, it made me so angry but i kept calm in front of the doctor and said i dont think its anything to do with reflux and that im convinced i have stomach cancer, he said no you don't it's reflux. Soon as I walked out the hospital I completely broke down in tears and was distraught on the way home in the car. I'm convinced I have stomach cancer and the Dr's are just dismissing it as reflux due to me not having a gallbladder.
I honestly don't know what to do anymore and I'm so scared, I suffered with severe health anxiety and general anxiety due to other past medical problems and my mind is going crazy. I don't go out anymore, I lay or sit on the edge of my bed all day and of a night I don't sleep anymore and I now don't go to work anymore and have been signed of sick with another medical problem. If I'm very lucky I might drift in and out of sleep for an hour max and then awake with the fear of what going on inside me and the constant bloating pain and gas. Everything in my life feels destroyed and I'm fed up of being in pain everyday and not sleeping.
Sorry this is so long I'm just trying to give a bit of background about me and see if anyone has experienced this before and also what should I do next? I'm petrified of hospitals as it is and it takes alot for me to step foot in them again after past experiences (as mad as that sounds)
If anyone could give any advice I would appreciate it and if I'm posting in the wrong group I'm sorry.
Thank you
Hi and a warm welcome to the Online Community but so sorry to hear about your ongoing problems.
The journey you are in is so stressful and challenging but you have done the right thing in reaching out to a place where you can ask questions and getting support from others who are on the ‘exact’ same cancer and journey.
The Community is divided into support groups (discussion rooms) and I do see that you have already joined our supportive Stomach cancer support group. This would be a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green (Bold) Group Link I have created above then once the group page opens yoi can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.
Do get back to me if you need further help.
