New here with EGFR Exon20 inversion mutation

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Hi

I have a rare lung cancer, grade 4. I've never smoked or worked with chemicals, just luck of the draw. I was diagnosed with cancer this July -22, with the EGFR type in August -22. Estimated time left 2-3 years, 50 years old. I had painkillers for another problem for months, so it took time for the cancer pain to break through.

I've only had cancer a few months and already had chemo x 4 and radiation twice to different body parts, so I feel like a beginner but weathered at the same time.

I'm getting great help, am painfree, no problems from lungs, more problems with metastases. I have just a few years to live, so I'm dealing with that, but find it's harder on my loved ones, including elderly parents. I never managed to have children, good thing right now. I'm quite fatalistic and trying to stay positive and strong. 

Is anyone in a similar situation? It's hard to find others with this diagnosis. Similar prognosis? How can you make it easier on your loved ones? Advice from family members? 

All the best and good luck to all, keep fighting, beat the cancer or beat the odds!

Love  A

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I can see that you have posted this in the lung cancer group and I'm sure you'll get replies there from the other group members.

    When you have a minute, it would be great if you could pop something in your profile about your diagnosis and treatment so far as it really helps others when replying to you or looking for others with a similar diagnosis.

    x

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