My husband was diagnosed with kidney cancer, in September from the sarcomatoid squamous cell, and has stage 4 matistatis cancer, he has major surgery on his spine to remove the tumour that was compressing his nerves, he also has cancer in his ribs and we were told nothing more could be done, so he came home in October with no support until carers could be put in place, so I cared for my husband by myself for a.month, fast forward a month the carers are in place the district nurses come every other day, some days I feel like I'm drowning, prior to the diagnosis we were private people who went to work and kept ourselves to ourselves, now its an open house and I feel like it's not my home anymore, I know this sounds like I'm being selfish but it's how I feel, I feel I don't get any apappreciation from my husband or his family for what I do day in and day out , im finding I'm suppressing my feelings as I don't feel heard or listened to and things just get laughed off, we have a dog thatdoesn't cope well with a lot of people coming in and out of the house, so we have to have a stair gate to separate him from the carers, nurses ect ...... im new here and felt I needed to reach out for some help and advise in supporting my husband, and support my own feelings too, so any advise and help is welcome
Hi and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm really sorry to read that your husband has been diagnosed with kidney cancer which has spread to his bones. It sounds like you're having an extremely tough time at the moment.
As the online community is divided up into different support groups, I'm going to recommend that you join the kidney cancer group, which is a great place to ask questions and share experiences with others who have this type of cancer, and also the carers only group, which is a safe and supportive place to discuss your worries and emotions with others who will understand what you're going through.
To join just click on the links I've created which will take you directly there. You can then join and start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
When you feel up to it, it would be great if you could update your profile with some details about your husband's diagnosis and treatment so far as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. If you're not sure what to write you can take a look at mine by clicking on my username.
x
Thank you so much im new to this as I saw it when looking for something else and thought it maybe a good idea to speak with people who are also walking in our shoes, I will look up the groups and update my profile.
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