Bowel cancer

Former Member
Former Member
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Hi I've just been diagnosed with bowel cancer at 39. I found out yesterday that my best option would be a total colectomy. Has anyone else had this operation and how long does it take to get used to a stoma bag? Thankyou. 

  • Hi  and a welcome to the Online Community but so sorry to hear about your diagnoses. 

    A cancer journey is such a stressful and challenging time but you have done the right thing in reaching out to a place where you can ask questions and getting support from others who are on the ‘exact’ same cancer and journey.

    The Community is divided into support groups (discussion rooms) so can I recommend you join and post in our supportive Bowel (colon and rectum) cancer and Ileostomy, colostomy and stoma support groups. These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    If you'd like to connect in with a group click on the Green (Bold) Group Links I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."

    You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.

    The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear.  We also have our Ask an Expert section but do allow a few working days for a reply.

    We also have our Telephone Buddy Service where you can be matched with someone who understands what you're going through, and they'll give you a weekly call.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.

    Do get back to me if you need further help.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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