My whole life has been turned upside down in 48 hours. I had a phone call on wednesday from my GP telling me they had seen some concerning things on my recent ultrasound. It was lesions on my liver. I had a ct scan today and a macmillan nurse came to speak to me. This has been in 48 hours. I feel like i’m in a dream, i’m terrified. I’m very tired and I’m not sure what else to say I’m very confused and upset. I’m just hoping for some support. I’m frightened. I’m 44 years old. Thankyou.
Hi rainbow4 and a welcome to the Online Community but so sorry to hear about your ongoing diagnoses.
This is such a stressful and challenging time for you, but when it comes to getting support and asking questions there is nothing better than talking with others who are on the ‘exact’ same cancer and treatment journey.
The Community is divided into support groups (discussion rooms) so once you have a ‘clear’ diagnosis do have a look through this list where you will find all our dedicated cancer support groups listed.
These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
Once you are in a position to connect in with a group click on the Green (Bold) Link I have created above. Once you find group page for ‘your’ type of cancer click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.
Macmillan have many support services so do check out the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
We also have our Telephone Buddy Service where you can be matched with someone who understands what you're going through, and they'll give you a weekly call.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.
Do get back to me if you need further help.
I have been on my incurable blood cancer journey for over 23 years now so have had time to deal with whatever comes along. My advice is take each day as it comes, collect as much information once you are fully diagnosed and then connect in with our groups….
In the meantime, do call the Macmillan Support Line on 0808 808 00 00 as you will get a supportive listening ear ((hugs))
