Hi Everyone….
I've just been diagnosed with a carcinoid tumor in my left lung,it's caused me to have multiple bouts of pneumonia...bronchoscopy performed to get samples and further scans also...PET scan has revealed it has not spread...consultant thinks the best way forward is to operate and remove the tumour...this feels like a very lonely time and a very scary time, trying to stay positive but its hard, anyone had carcinoid cancer in the Lung...
if so what happened if you had surgery...I’m due to have surgery next Tuesday and I’m petrified 
UPDATE 5/9/22
So I’m finally home
Wow what a whirlwind of a week…everything went as it should have as far as I know
Just waiting for the next discussion with the consultant now
Beginning of November apparently!!
They managed to do key hole surgery as they said but took the lymph nodes around the tumour too for sampling…
I’m very sore and feel emotionally drained today….thank you to everyone who took the time to message on my original post….
UPDATE 14/10/2022
So I have heard off my surgeon finally today after 6 weeks of waiting by phone call!
So all in all the operation went well and they removed the tumour and lymph nodes for sampling
He’s telling me they found cancer cells around the tumour and successfully removed some but not all…I have another appointment the 8th November
But once again I feel like I’m
In limbo as to what’s going to happen next…anyone else experience this?
Sorry if it’s confusing what I’ve written
Any help or advice would be appreciated….
Thank you x x x
Hi and a welcome to the Online Community but so sorry to hear about your diagnoses.
This is such a stressful and challenging time for you, but when it comes to getting support and asking questions there is nothing better than talking with others who are on the ‘exact’ same cancer and treatment journey.
The Community is divided into support groups (discussion rooms) so can I recommend you join and post in our supportive Neuroendocrine tumours support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green (Bold) Group Link I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
Macmillan have many support services so do check out the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
We also have our Telephone Buddy Service where you can be matched with someone who understands what you're going through, and they'll give you a weekly call.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.
Do get back to me if you need further help.
