Hi, I have just joined this group as I am feeling a bit apprehensive and confused. I am having an op to remove Lymph node glands which I have been told is secondary cancer. I have had scans and visual examinations but the primary cannot be found. Has anyone had an unknown primary and can relate? I don’t know how they can treat a cancer if it cannot be found. Thank you.
Hi and welcome to the Community but sorry to see you joining us and to hear about your diagnoses. This is such a stressful and challenging time but when it comes to support there is nothing better than talking with others who are on the exact same cancer and treatment journey.
The Community is divided into support groups (discussion rooms) so can I suggest you consider joining our supportive Unknown primary cancer and Lymph nodes, secondary cancer groups. These are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green (Bold) link(s) I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
Macmillan have many support services so do check out the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.
Do get back to me if you need further help.
All the very best.
