It's all gone wrong

Former Member
Former Member
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My husband was diagnosed in April 2021 with a malignant melanoma which started as a lesion on the heel of his foot. We naively thought it was just a blister for a while. Fast forward a bit and after 2 heel ops, he was offered immunotherapy.  After 6 months a PET scan revealed it had travelled to lymph nodes behind his knee and in his groin and the immuno had been ineffective. 10 weeks ago, he had the lymph nodes removed.  All seemed to be going well until 5 days ago , just after a recent PET scan, he was admitted into hospital , severely unwell. Scan results have since shown he has extensive disease on his liver, spleen, lungs and chest cavity lymph nodes with it now also starting in his bones. To say I'm broken is an understatement.  He's only just turned 49 last week. And the irony is it's a rare cancer at his age 

  • Hi and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm really sorry to read that you and your husband have recently discovered that the immunotherapy has stopped working and his melanoma has spread elsewhere.

    As you know, the online community is divided up into different support groups and I can see that you've already joined the carers only group which is a safe and supportive place to discuss your worries and emotions with others who have a loved one living with cancer.

    You might also like to join us over in the melanoma group as this will give you the chance to talk to others who are having treatment for advanced melanoma.

    If this is something that you'd like to do just click on the link I've provided which will take you directly to the group. You can then join and start a new post in the same way as you did here and join in with exiting conversations by clicking on 'reply.

    When you feel up to it, it would be great if you could pop something about your husband's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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