My husband has recently been diagnosed with a neuroendocrine tumour of his pancreas and he also has to have his spleen removed he is having surgery in 3-4 weeks my question is the surgeon keeps saying don't think of this cancer as cancer and once its removed that's it but I have started researching this cancer and I don't think they are telling us the full truth and apparently we should ask to be under a specialist I don't know what we should do?
Hi and welcome to the Online Community although I am sorry to hear about your husbands diagnosis.
A cancer diagnosis in the family can be such a stressful and challenging time but I do hope you will find the community a safe place to get support and ask your questions.
The Community is divided into support groups (discussion rooms) so can I suggest you consider joining our supportive Neuroendocrine tumours group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family on the same journey.
If you'd like to connect in with a group click on the Green (Bold) link(s) I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
When it comes to the practical and emotional challenges of supporting family you may also benefit from joining our general Carers only group where you will connect with others navigating the same challenges.
Macmillan have many support services so do check out the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.
Please do get back to me if you need further help.
((hugs))
